The report of an association between the retrovirus XMRV and chronic fatigue syndrome (CFS) is extremely exciting. As someone who has been treating CFS patients for 20 years, I have been avidly following these reports and I congratulate the Whittemore Peterson Institute, Dr. Judy Mikovitz, and their colleagues on this important finding. I look forward to learning more about this breakthrough as they continue their vital research into XMRV, CFS and treatments for it.

I do think it’s important to acknowledge that science moves slowly and, no matter how long you have been ill with CFS, it will never seem like science is moving quickly enough. This illness robs patients of so much – not only their health, but also their livelihood, predictability, social connections, security, self esteem and other fundamentals.

The scientists are working diligently, as they have for more than two decades, to unravel the mysteries of CFS and develop effective medical treatments for it. As they persevere with this new avenue to explore, we must continue taking care of those who suffer the effects of CFS – not just the patients, but also their families and loved ones who have also seen their lives change in so many significant ways.

As I have listened to my patients talk about XMRV in recent weeks, I have heard them express many emotions – first hope and excitement that scientists are closer to finding the answers that will return them to health, but also anger that so much of their lives has already been stolen by CFS, and concern over the potential implications of having a virus-associated illness. Change, even positive change, often produces new questions and stresses that we may not have considered before. We at Albany Health Management Associates are glad to be helping our patients and their families navigate more smoothly the road that lies ahead, wherever that road takes us.

For more information about XMRV and CFS, here are some links to articles and opinions from some of my colleagues in the battle against CFS and national journalists who have been investigating CFS for decades.

Dr. David Bell

Dr. Nancy Klimas

Dr. Charles Lapp

New York Times

Dr. Suzanne Vernon (CFIDS Association)

Whittemore-Peterson Institute

For more than two decades, I’ve been working individually with people who are trying to navigate the “new normal” of life with a chronic condition, and also training other medical and mental health professionals whose clients are traveling this difficult path. With this blog, I intend to bring much of the information that I share during my speaking engagements and my weekly counseling and professional development sessions to a wider audience through the Internet.

I’ll be talking a lot about the Fennell Four-Phase Model of chronic illness and trauma, which has been used worldwide since the early 1990s. If you’re not yet familiar with the Fennell Four-Phase Model, you can find a brief overview on my website at www.albanyhealthmanagement.com/ourfocus_ffpm.shtml. In this blog, we’ll get further in depth with the philosophy of the model and its utilization in the treatment of chronic illness with Fennell Four-Phase Treatment (FFPT).

I’ll also bring you insight about chronic illness and trauma, particularly as they relate to health conditions, criminal justice and education. I’ll be culling topics from my speaking engagements and news events as they relate to our work. And I’ll invite my colleagues to contribute to broaden the knowledge we collectively gain.

If you have any questions or comments, I’d like to hear from you. Since medical blogs can be a frequent target for spammers, I’ve implemented some extra security steps, including the requirement for all comments to be approved before they are posted. So if you don’t see your comment appear right away, please don’t worry – it’s probably waiting for me get a free moment to review it so I can post it on the blog.

If you have a question for me that you don’t wish to post on the blog, e-mail me using my contact form.

Thank you for reading this far – please let me know if there are topics you’d like to read about or information you are seeking. I look forward to our dialogue and hope you will, as well.