Living Well With Chronic Pain

I was privileged to be a guest on WMHT-TV’s Health Link with Benita Zahn on April 10th. My fellow guests — Dr. Charles Argoff, professor of neurology at Albany Medical College and director of Albany Medical Center’s pain management program, and Cindy Perlin, president of the Northeast Regional Biofeedback Society — and I were discussing “How to Manage Chronic Pain.”

You can watch a video of the show at albanyhealthmanagement.com/press_publicity.shtml#HealthLink-April2011.

Transitions For Adolescents With Autism

In November, my colleague Fred Coulter, PhD, made a presentation to the Ohio Center for Autism and Low Incidence (OCALI) conference about how he is using the Fennell Four Phase Model (FFPM) with his clients with autism. Fred is an associate professor at Defiance College in Defiance, Ohio, and he and I have been collaborating for several years. Here is his account of the meeting. — Patricia

I was very excited to present my work with Patricia Fennell in November at the Ohio Center for Autism and Low Incidence (OCALI) annual conference. The first part of the 75-minute presentation was an overview of the Fennell Four-Phase Model, while the second part was a discussion of how I apply the model when working with families whose children and adolescents have autism. My work is done through the Hench Autism Studies Program at Defiance College in northwest Ohio.

How FFPM Relates to the Autism Experience

The capacity-filled room, with over 50 people, was a mixture of professionals, educators, and family members. It was the family members who seemed to connect the most with Patricia’s model, especially Phase 3, Resolution, which is to make meaning of their situation. I say this because as I explained the “dark night of the soul,” numerous parents nodded their heads in agreement with what I was saying — that at some point a family has to come to grips with their situation and decide what they are going to do about it. After making their decision, then they can move into Phase 4, Integration, making the meaning a part of their lives.

Next, I talked about how I work with families to help them and their adolescent children make the transition to adulthood. As an introduction to the application of the treatment model, I used a story written by Emily Kingsley titled, “Welcome to Holland.” Her story uses the analogy that pregnancy and childbirth is like preparing for an overseas trip to Rome. The problem was that when she gave birth to a child with Down syndrome, she equated it to the plane unexpectedly landing in Holland (analogous to Phase 1, Crisis). She goes on to explain her shock at what she thought was a terrible mistake. Nevertheless, over time she has come to appreciate what Holland has to offer (Phase 4). To me, this story illustrates how Emily had moved through the Fennell Four-Phase Model (FFPM).

Application of FFPM at Defiance College

Then I explained how FFPM is being applied to a classroom on the Defiance College campus that is administered in partnership with the Defiance City Schools. At this time, there are five adolescent men in the program, which uses the college campus as a setting for them to learn independent living skills. The goal is to prepare them for when they will age out of special education services when they turn 22 years old. As I work with the young men’s families, I realize that they have to make meaning of what their adolescents are capable of doing work-wise and how much autonomy they can handle. The “dark night of the soul” for some of the families is having to recognize that their children are chronologically becoming adults and need to reach their potential in the social and communication skills needed for functioning in society. Also, families start to face the fact that parents will not always be there to protect and care for their children and that they need to plan for the future.

Using the Fennell Four Phase Treatment model, I can help families go back to Phase 2, Stabilization, and collect information about programs in order to set goals for their children and themselves. Through a parent group, they can share their stories and be encouraged by other parents who have gone through the transition to adulthood. Finally, they can reframe how they see their future and integrate their plan into their lives.

The presentation was well received and many people talked with me after it was over about how the Fennell Four-Phase Model could be applied to their lives. I have learned so much from presenting with Patricia about how to help families systematically work through the daunting task of raising their children with autism so that they can be empowered to have their children reach their full potential when become young adults.

Dr. Fred Coulter is an associate professor at Defiance College in Defiance, Ohio. In addition to his faculty responsibilities, he is the Parent Partnership Coordinator for the Hench Autism Studies Program. He can be reached at autism@defiance.edu.

Video From Second Creativity Group Posted

I’ve posted the video of the second Creativity, Resolution, Art, Illness & Community (CRAIC) group meeting (held on August 25) on my website. I hope you’ll take time to view the video (it’s a little less than an hour), as well as the video from our first meeting, and let me know what you think.

Some of the things that happened during the webinar include:

• Musicians Scott Petito and Beth Reineke offered great feedback on how they use innovation and improvisation in their art. You can also listen to their music on the same webpage where we posted the video from the August 25 meeting.
• We had a great talk about the five capacities of improvisation — 1. Tolerate ambiguity, 2. Take risks, 3. Become curious, 4. Improvise, and 5. Innovate. We asked participants what they thought were their strengths and weaknesses among these capacities and got some really interesting responses. None of the participants thought they were very good at tolerating ambiguity, so it was logical that most people thought that’s the area where they needed the most help.
• We also had a lot of questions about the difficulty of judging your own work and about sharing your work with others. Some people felt that the idea of “art for art’s sake” — doing something creative that you like, regardless of what other’s might think — is sufficient.
• Scott and Beth offered a lot of insight on the topics of ambiguity, getting started on a project and the benefit of sharing your work with others.

We intend to hold CRAIC meetings every other month and will soon announce a date for the next event. To receive notification about the next CRAIC meeting, join our e-mail list by contacting us — please note in the comments box that you would like to be added to the CRAIC e-mail list. We’ll also post the next date on the Events page on our website.

Creativity Group Meeting Aug. 25

The second Creativity, Resolution, Art, Illness & Community (CRAIC) web-based meeting will be held on August 25th at 11 a.m. Eastern. This group is a safe environment for sharing and getting feedback on artistic expression, and for learning to use creativity to develop a healthy response to chronic illness. There is no charge for participating, but you must register in advance at https://www2.gotomeeting.com/register/671968747.

I’m pleased to have Scott Petito and Beth Reineke join me as our featured artists in residence this time.

Scott is a Grammy nominated composer and producer. His NRS Recording Studio in Catskill, NY has been a popular destination for acoustic and jazz artists for many years. Scott is a gifted bassist and multi-instrumentalist who has performed on hundreds of recordings in many musical styles. James Taylor, Rory Block, The Band, Dave Brubeck, Jack DeJohnette, Mercury Rev and Keith Richards are only a few of the many artists with whom Scott has recorded and/or performed with. Scott is also a member of the legendary punk/poet band The Fugs, who have recently released, Be Free! The Fugs Final CD [part 2]. Scott has his own solo bass ambient instrumental CD titled Sbass Music and for over a decade has been performing as a duo with his partner, Leslie Ritter. Together they have released three highly acclaimed vocal recordings, In The Silence, Circles in Sand and This Christmas Morning. For more information, visit scottpetitoproductions.com or leslieandscott.com

Beth has been involved with music in one way or another for most of her life. After moving to Woodstock, N.Y., she began working at Scott’s NRS Recording Studio in 1997. She has worn many hats while there, including recording assistant and session singer. Beth has been Leslie Ritter & Scott Petito’s road manager, as well as providing stirring harmony vocals at their performances over the years. Some of the other artists she has recorded and/or performed with include; Rick Danko, Tom Pacheco, Pete Seeger, Michael Jerling, Scott Ainslie, Michael Franks, Helen Avakian, Aine Minogue and Anne Hills. Beth has also worked as a music publicist and radio promoter for multiple record labels and musicians such as the Hudson Valley Records roster of artists, Artie Traum, Happy Traum and Priscilla Herdman. For more information, visit myspace.com/lehemmusiconmyspace.

I hope you’ll be able to attend the meeting – please make sure to register in advance at https://www2.gotomeeting.com/register/671968747.

Creativity Video Posted

I’ve posted a video of the first Creativity, Resolution, Art, Illness & Community (CRAIC) group meeting (held on June 16) on my website at http://www.albanyhealthmanagement.com/services_craic_pastmeetings.shtml. I hope you’ll take an hour to view the video and let me know what you think.

Some of the things that happened during the webinar include:

• We talked about how innovation and creativity are vital in developing a healthy response to chronic illness and trauma.

• Photographers Bill Glenning and Ann Fantauzzi presented images they have taken and talked about how their art has been influenced by their chronic illnesses. Their photos are also posted below the video on the Past Meetings webpage.

• Participants asked questions and offered insightful thoughts about how to use art and innovation and to stay motivated when you have a chronic illness. (We’ll have more conversation at future CRAIC meetings.)

At the end of the video we announced a date for the next meeting, which unfortunately we’ve had to reschedule. We haven’t set a date yet — it will be August or September — so please join our e-mail list to receive information about the date and registration details. Just contact us with your name and e-mail address and note in the comments box that you would like to be added to the CRAIC e-mail list.